Noah's story is behind campaign

By Connie Osborne Friday 31 January 2014 Updated: 31/01 10:02

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Buy photos » Father Sam Yates and mother Sarah Moulder are raising awareness of congenital heart defects after their son Noah, two, was diagnosed with heart problems. Picture by Marcus Mingins 0514016MMR

A MOTHER is backing a campaign to raise awareness of heart defects after her baby boy was born with a life-threatening condition.

Sarah Moulder has spoken of the family’s devastation ahead of Congenital Heart Defects Awareness Week, after her two-year-old son Noah was diagnosed with a number of conditions.

The brave toddler will eventually need a pacemaker or a heart transplant after he was found to have problems including a hole in his heart, as well as hypoplastic right heart syndrome which means the right side of the organ is underdeveloped and does not work properly.

Concerns were first raised with Sarah and father Sam Yates when a 12-week scan revealed fluid around his heart and although little Noah was not born prematurely they were told to prepare themselves for the worst.

“Doctors gave us two options, we could either take him home and let him slip away or he could have this three stage surgery,” Sarah told the Standard.

“We were devastated because you just don’t expect things like this to happen. You just hope and want your child to be happy and healthy, and it breaks my heart everyday.”

At just two-days-old Noah underwent surgery where a shunt was put inside his heart to pass deoxygenated blood through to the lungs.

At five months he had a vein taken from his head and attached to his heart so blood could be sent to his lungs without the need of the shunt.

Between the age of three and five he will need a further operation to help blood flow through to his lungs.

“I’m still uncertain what the future holds for Noah which is devastating,” added the Brockhill resident.

“But I just want moms and dads to ask questions like is there four chambers in his or her heart? Or does the heart look well? Simple questions which could save a life.

“If I can send a message out there for a least one person then I know I’m doing a good job. So many heart defects go undetected and this means they can be spotted straight away and maybe something could be done.”

She added support from Noah’s father and other mothers in a similar position had been a great source of comfort.

Congenital Heart Defects Awareness Week runs from February 7 to 14. Visit www.chd-uk.co.uk for more information.

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